London
The London team is headed by Dr Clarissa Pilkington and Professor Lucy Wedderburn and patients are seen in the rheumatology departments of Great Ormond Street Hospital and University College London Hospital.
Great Ormond Street Hospital and The Institute of Child Health London – Rheumatology Unit
GOSH
The rheumatology department accepts, mostly, tertiary referrals for diagnosis and management of children with inflammatory rheumatological diseases. Referrals on non-inflammatory musculoskeletal problems are also accepted for diagnosis and advice on management.
A multidisciplinary team of doctors, therapists, nurses and administrators all work together to support our patients and their families. Inpatients are accommodated on Penguin ward and there is day care, outpatient and ambulatory services, the latter is supported by the patient hotel at GOSH.
Our medical team members also work in the adolescent unit at the University College Hospital, London. Our patients will be transferred to this clinic between the ages of 14 and 16 to allow treatment in an age specific environment and to facilitate easier transferral to adult clinics at the age of 19.
Uniquely, this unit provides a lead to a GOSH-wide service for referral and management of vasculitis and recurrent fever syndromes. Multispecialist clinics and discussion meetings occur at regular intervals, and the core specialties regularly involved are rheumatology, nephrology, infectious diseases and immunology.
The team also works closely with local teams in secondary centres to ensure that our patients are treated in a way that best suits them and have set up the Rheumatology Shared Care Unit (RheSCU) Network to facilitate this.
ICH
The JDM Cohort Biomarker Study and Repository (UK and Ireland) Founded in 2000, the cohort was originally called the National JDM Registry and Repository (UK & Ireland). The cohort study is coordinated from the UCL Institute of Child Health. The cohort study was founded by grants from the Cathal Hayes Research Foundation and is currently funded by a grant from the Wellcome Trust. We are currently fundraising to help secure the future of this study and to be able to continue collecting data on this rare, but potentially debilitating, illness.