About JDRG and the Juvenile Dermatomyositis Cohort Biomarker Study and Repository (UK and Ireland) (JDCBS)
To better understand this rare disease, the aim of the JDRG is to collect information and serial blood samples on a large number of children and young people to learn about how to treat them better, and to eventually discover the causes of the disease.
The group of researchers involved in the JDCBS study and the work within it, are called the Juvenile Dermatomyositis Research Group (JDRG). The centres involved in the JDRG are from all around the UK and all have specialist Paediatric Rheumatology teams working in the field. (see About JDRG)
Each centre has several involved individuals, including a Principle Investigator (PI), who is usually the doctor seeing the children with myositis, and also other staff such as nurses, physios or others who care for and work with children with JDM and other forms of myositis. The JDRG meets on an annual basis to discuss progress, projects, ideas and how the study can help improve the lives of children with myositis.
Members of the JDRG are involved in many projects for research. New centres that are able to contribute data and recruit families to join this cohort are always welcome and interested centres should first contact the JDRG Administrator at
info@jdrg.org.uk
The cohort study now has 10 paediatric centres throughout the UK (mainly Children Hospitals) that collect information for the study. See the map below that indicates the JDRG centre locations.