Juvenile Dermatomyositis Cohort Biomaker Study and Respository UK & Ireland

Contact us for details:

Juvenile Dermatomyositis Research Centre

Institute of Child Health

30 Guilford Street

London UK


Email: info@jdrg.org.uk

Fax: 0207 905 2672

Welcome to JDRG

Juvenile Dermatomyositis (JDM) is children illness which affects the skin (dermato) and muscles (myositis) and frequently other parts of the body including joints, lungs, gut and blood vessels. See Treatment.

JDM is a rare condition (affecting about 3 children in a million each year in the UK) which makes it very difficult to carry out research. 

In 2000 a group of leading UK Rheumatologists formed The Juvenile Dermatomyositis Research Group (JDRG) and began recruiting patients to the JDM Cohort Biomarker Study and Repository (formally known as the National (UK and Ireland) Registry and Repository). See About JDRG

The study and repository collects and stores serial clinical data linked to biological specimens such as blood, saliva, serum, DNA, skin and muscle tissue from biopsies. The data and specimens facilitate research into JDM and other forms of myositis. See Research The resource is open to project applications from clinicians, scientists and researchers. All applications are controlled by an independent steering committee to secure the quality of the research conducted.

This website gives information about the JDM research group including information for patients, parents and health professionals.

Are you interested in helping us in a research project for families of young people with JDM? Please See Research