The JDRG meets on an annual basis to discuss progress, projects, ideas and how the study can help improve the care of children with myositis.

The study is overseen by an independent steering committee, which meets on a regular basis. The committee has patient/parent representation and also consults with a group of young people with JDM about the research. Click HERE​ to see more about patient/parent involvement in the JDCBS.

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