On behalf of the JDRG welcome to our Patients and Parents page. This page is very much for all those patients/families/friends living with juvenile dermatomyositis (JDM). We want to be able to give you as much information as possible. The amount of information wanted by each of you will differ, some people like to know as much as possible while others do not. Hopefully this site will accommodate both.
As this site is for you we want to know what you would like so please go to the website feedback page and send us your ideas.
A number of issues arise regularly when talking to patients in clinic such as the difficulties with taking medication and the problems explaining to those around you about the condition. If you have any tips on how to cope with issues like these then please contact us and let us know so we can pass them on.