​How long are children with JDM on treatment for ?

Each child / young person is different and the length of drug treatment will depend on the characteristics of the disease in the individual child. For some children the disease may be short lived, whilst others may have the disease for many years. Doctors aim to control the disease so that your child can lead a normal life and do everything that they wish to do.

Treatment would usually only be stopped after your child has not had any symptoms (complaints) of JDM for some time (at least 1 year with no complaints but could be longer). JDM is a disease particularly sensitive to drug treatment reductions. This means that if drugs are reduced too fast, it can cause a flare of the disease. Your child should only reduce medication on the advice of your specialist team.

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