In 2000 a group of leading UK Rheumatologists formed The Juvenile Dermatomyositis Research Group (JDRG) and began recruiting patients to the JDM Cohort Biomarker Study and Repository (formally known as the National (UK and Ireland) Registry and Repository).
The study and repository collects clinical data and specimens such as blood, saliva, serum, DNA, skin and muscle tissue. The specimens facilitate research into JDM and other forms of myositis. The resource is open to project applications from clinicians, scientists and researchers. All applications are controlled by an independent steering committee to secure the quality of the research conducted.
This website gives information about the JDM research group for patients, parents and health professionals.